Project Purple Butterfly 2025
A symbol of what fibromyalgia has taken from us
Fibromyalgia is not just pain. It’s an illness that quietly steals pieces of our lives - both big and small. Activities that once felt natural become impossible. Walking in nature, playing with our kids, dancing, working, creating, traveling - all of these can turn into distant dreams.
Project Purple Butterfly is a visual symbol of this loss. Its goal is to show the public how much fibromyalgia takes from our lives, while reminding the world that even though we are often invisible, we still have a place in it.
The Purple Butterfly Project is more than just a symbol of loss. It’s a way to show the reality of life with fibromyalgia to the media and the public.
Each photo is a small reminder of what fibromyalgia has taken - and how challenging and limiting this illness really is.
Not just for us, but also for our loved ones.
On May 12, International Fibromyalgia Awareness Day, we will publish a special post gathering all the submitted photos.
We want to visually and simply show how many experiences and moments have disappeared from our lives.
Project Purple Butterfly Gallery - fibromyalgia sufferers
Gallery of the Purple Butterfly project - our supporters, loved ones and kindred spirits
Official Project Purple Butterly 2025 information
Project Name: Purple Butterfly
Organized by: Civic Association Fibromyalgia Slovensko, ID: 56610271
Project Lead: Petra Konečná – Founder and Chairwoman
Launch Date: March 2025
Purpose: To raise awareness about everything fibromyalgia takes from people’s lives — using a simple, visually powerful symbol placed in spaces we can no longer visit or enjoy.
Main Awareness Activity: May 12 – International Fibromyalgia Awareness Day
On this day, we will showcase a gallery of all submitted photos as part of a larger awareness campaign. This project may also be included in our next open letter to the government and media..
Contact information:
📧 info@fibromyalgia-slovensko.eu fibromyalgia.slovensko@gmail.com
🌐 www.fibromyalgia-slovensko.eu
📱 Facebook: Fibromyalgia Slovensko
Important Note
We kindly ask all participants to respect public and private spaces when taking part in the project.
❗ Do not use glue, tape, staples, or anything that could damage property.
Please place the butterfly gently — hold it, lean it, or tie it with a ribbon for the photo. You may remove it afterward.
Photos can also be taken symbolically at home — next to an object or a photograph if you cannot go to the location physically.
OZ Fibromyalgia Slovensko
fibromyalgia.slovensko@gmail.com
© 2025. All rights reserved.
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